Thursday, October 15, 2009
Been fighting a cold all week, kids too. Had a scare in Bella's preschool class over swine flu. Yikes! We've had the flu shot, but not the H1N1 shot yet. So far looks like a scare is all it is going to be.
Preschool put on a play today about the three little pigs and the big bad wolf, except there were more than three pigs and the big bad wolf is a real sweet-heart. Bella was a pig. We had worked on shaky her head "no" after the wolf was suppose to knock on the door, but yet when it came time today her fingers were stuffed in the mouth and participation was limited. Not sure if this is an age thing or a disabled thing. Maybe a little of both.
After Bella's transfusion at the hospital did some finagling around vehicles with my Mom and I stayed at the hospital to visit with one of Bella's classmates and his family that was in the ER. Now, we've had our fair share of ER visits, but that doesn't make it any easier when you walk into the room and the little kiddo is laying there without being his usual happy self.
Felt out of place, but yet right where I needed to be.
It's funny how people can come in and out of your lives and touch us so deeply without ever knowing so.
Did anyone read the article on CNN about the woman who only used half her brain and was doing amazing? I posted it on facebook and only did so because I couldn't believe what I had read and wanted to share with everyone. Joe and I sometimes will spend nights talking about Bella and how much she is affected in daily rituals that so many take for advantage and I usually end up crying and worrying about her future and what it will hold for her, but this article gave me so much hope. I just wanted to reach through the computer and give that girl a big hug for being such an inspiration and for sharing her story.
Did the bedtime thing by myself tonight with the kids since Joe is working at his second job for the next 5 nights in a row. Kind of got to me when I kissed him goodbye. I might have got a little teary-eyed and I might have hung on to the hug a tad long. I just don't understand where we went wrong in life. Why can he not find the "job"? We are down to bare bones here and we still are struggling. I know we are not alone in this fight, but man, as you are living it, it sure feels like a lonely road.
Well, I think on nights like these when I can just rattle on forever it is best to cut rope and go home.
So goodnight till we meet again.